Renal Research Nurse
4 weeks ago
About the Role
We are seeking a highly motivated and organized Renal Research Nurse to join our team at the Royal Devon University Healthcare NHS Foundation Trust. As a Renal Research Nurse - Data Enrichment Specialist, you will be responsible for auditing and enriching rare kidney disease data at Kidney Centres in the South West.
Main Responsibilities
- Work with key stakeholders to build an understanding of the relevant rare disease datasets held in the RaDaR registry and the C3G and IC-MPGN study.
- Establish effective working relationships with key stakeholders in each assigned Centre, liaising with key contacts to develop an agreed plan for relevant medical records and biopsy reports to be accessed.
- Conduct audits of the data, for relevant rare disease groups in each assigned Centre, to establish data gaps and inaccuracies.
- Conduct on-site visits at relevant Centres, liaising with key contacts to identify priority data items on which to focus enrichment activities.
- Liaise with UK Renal Registry contacts to access data completeness reports and updates, and guidance on where to find the data items.
- Consult data reports together with local records, cross-reference against data held in the RaDaR registry, and manually add, transcribe and enrich the data where necessary.
- Conduct subsequent audits to establish and ensure improvements in data quality.
- Provide regular reports and updates to the senior project manager, Rare Disease Groups, and to RaDaR Chairs.
About You
We are looking for someone with a flexible and highly motivated attitude who is able to use their initiative and be innovative. You need to have an interest and understanding of data and renal terminology, as well as proven IT skills and competence in data management.
Working Pattern
This is a full-time role, Monday to Friday, with some UK travel and overnight stays required.
Interview Date
Please note that the interview date is subject to change.
Benefits
We offer a comprehensive benefits package, including access to our own occupational health services, counselling, onsite wellbeing activities, and groups. You will also have access to an extensive range of staff discounts on shopping, fitness, and leisure options, as well as salary sacrifice options and the NHS Pension scheme.
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