Paediatric Metabolic Disease Specialist Nurse

3 weeks ago


Bristol, Bristol, United Kingdom University Hospitals Bristol and Weston NHS Foundation Trust (UHBW) Full time
Job Title: Paediatric Metabolic Disease Clinical Nurse Specialist

University Hospitals Bristol and Weston NHS Foundation Trust (UHBW) is seeking a highly skilled and experienced Paediatric Metabolic Disease Clinical Nurse Specialist to join our team. As a key member of our specialist team, you will play a vital role in providing high-quality care to patients with complex metabolic disorders.

Job Summary

This is an exciting opportunity for a Paediatric Nurse with excellent communication skills to work within a specialist team, using their own initiative, demonstrating problem-solving skills, and excellent organisational skills. You will work closely with the established CNS team, providing care to all aspects of the metabolic service.

Main Duties
  • Provide specialist advice to manage complex symptoms for both inpatient and outpatient care, including emergency alerts and illness management.
  • Develop, improve, and promote the service, ensuring the delivery of high-quality, cost-effective care, utilising the support and guidance of senior colleagues.
  • Develop and share expertise within the multidisciplinary team.
  • Develop the skills to act as a resource in the care of patients' needs, ensuring an optimum level of service to patients and their carers.
  • Work closely with community, hospital, relevant network staff, and organisations to ensure an effective seamless service.
  • Provide effective communication systems of support for patients.
  • Provide education to professionals, patients, and their families.
  • Build up a skill set to embed patient and public involvement within the sphere of specialist nursing practice.
  • Ensure that all patients and families are aware of all treatment options, including clinical trials.
  • Work as a patient advocate, to help negotiate the patient journey and ensure optimum care is provided to each patient.
  • Support patient investigations and care, including CNS-led investigations and patient infusions, enzyme replacement therapy.
  • Coordinate and plan patient assessments as per care plans and national monitoring NICE managed access agreements.
  • Provide cross-cover to the Paediatric Metabolic, Batten's, and Barth Syndrome CNS service.
About Us

University Hospitals Bristol and Weston NHS Foundation Trust (UHBW) is one of the largest acute Trusts in the country, bringing together a combined workforce of over 13,000 staff and over 100 different clinical services across 10 different sites, serving a core population of more than 500,000 people across South West England. UHBW has been rated by the CQC as 'Good' overall, and our staff are proud to deliver excellent care to the people of Bristol, Weston, and beyond.

We are committed to safeguarding and promoting the welfare of children, young people, and vulnerable adults. As an equal opportunities employer, actively working towards a diverse workforce, we aim to recruit and retain a workforce that represents the rich diversity of the local population at all levels.



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