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Disabled CEO

4 months ago

London, United Kingdom Hale Household Full time

**PA advert**

Have you worked in hospitality for too long? Are you tired of handling drunk people? Do you want more of your time back? Do you only want to work weekends - keeping your weeks entirely free? Do you love the idea of having a dog for company while you work?

Have you considered a role in 'care'?

By that, I don't mean 'working for an agency visiting fifteen people a day'. I mean working on a 1:1 basis, with a 24.5 hour shift starting at 7am every Saturday and finishing 7:30am Sunday, followed by being on-call until 07:30am Monday if the person working on Sunday is off sick or goes home sick.

This is a 'care job' with a difference. I am looking for people who can assist me on my direction - not people who want to 'look after' someone. I don't need people to have experience in care. I'm a charity CEO, run a leading arts organisation, and am an award-winning creative. The dynamic I strive for is a friendly one, where my team are supporting me at my direction, rather than one in which they're 'looking after' me from above.

This means that when I hire, I'm seeking assistants who can follow my guidance and support me as I live my life. People working with me facilitate my life and I'm responsible for the decisions I take. I call my team "Personal Assistants" or "PAs", and usually employ 7 regular people - one per day, plus a few people who do cover.

These people help me across every aspect of my life, filling in where my body doesn't work. I'm in a wheelchair, and I usually get hoisted between bed and my chair. I use a machine for breathing at night and when needed during the day. I have a gastric stoma, a feeding tube, and a catheter. My condition means I'm effectively paralysed waist-down and my upper body (especially my core) is very weak.

Your role would be to do the things (and help do the things) I can't. If you think about all the things you do over a 24 hour period - from turning in bed or getting out of bed to going to the shops, doing the cleaning, or walking the dog - you're filling in for, and supporting, me where my body can't do it. You're also managing everything from stock levels to my medication timings, preparing and giving me them as required, and learning to monitor for what I might need, and when.

It can seem like a lot at first, but as time passes people end up in a very smooth rhythm with me in which everything necessary gets done, sometimes hardly needing to talk to achieve this.

I'm currently recruiting for regular weekend hours. You would work 28.5 hours per week, and up to 52.5 if you're called in on your on-call shift. These hours are all worked across Saturday (working 24.5 hours from 07:00am until 07:30am on Sunday) and then Sunday (on-call until Monday at 07:30am).

You earn about £298/week, with up to about £243 extra if you're called in on your on-call day. There is lots of overtime available.

You do not need care experience - this is both an advantage and a disadvantage. I'm more interested in your personality and your approach than the relevance of your employment background. Previous excellent PAs have been trainee psychologists, nursery nurses, chefs, deep sea diving instructors, actors, and translators, as well as former carers.

Character traits I look for in PAs are:

- Pragmatism and an ability to see a situation and just get stuck in and get on with it
- Enthusiasm for doing the things that need doing
- A sense of pride in completing a job well
- A logical sense of organisation which helps ensure my stock is neat and my space tidy
- A calm head even if I'm stressed or there's a crisis
- A friendly nature
- An understanding that this job takes place in my (and my wife's) home, and life, requiring discretion

In a practical sense, I'm looking for people who are unfazed by the personal, physical, and medical care aspects of the role. These include giving regular and emergency injections, hoisting and manual transfers between bed and wheelchair (which everyone of average fitness I've employed has been very able to do), and personal and intimate care, including transanal irrigation for bowel management, using the Qufora bed system. I'm very used to training people in all these tasks, as long as they're willing to learn.

I train everyone directly, myself and the current members of my team. The training is very 'paper-heavy', and it relies on you being confident reading, synthesising, and following written instructions.

Day to day, there's a common routine, with medications at least 8 times across the day, and a schedule of washing, dressing, and physiotherapy. Overnight, once I'm asleep, you're monitoring my ventilator for alarms, turning me in bed every 2 hours to prevent bed-sores, and monitoring very closely if I'm ill, but able to nap between turning me if I'm not.

I like to think that PAs have the opportunity to get involved with the fun bits of my life as well as the boring ones - with the chance to travel around the UK and Europe with me, and fol