Paediatric Sickle Cell Care Specialist

4 weeks ago


Watford, Hertfordshire, United Kingdom Hertfordshire Community NHS Trust Full time
About the Role

We are seeking a highly skilled and experienced Sickle Cell Nurse Specialist to join our team at Hertfordshire Community NHS Trust. As a key member of our Children and Young People's Sickle Cell Service, you will play a vital role in providing expert care and support to children and young adults with Sickle Cell Disease.

Key Responsibilities
  • Manage a patient caseload and provide expert assessment, planning, and evaluation of care for children and young adults with Sickle Cell Disease.
  • Provide advice and support to all staff involved in the care of children and young adults with Sickle Cell Disease, focusing on health promotion and prevention of crisis.
  • Act as an advocate for patients and staff, ensuring they receive the understanding and facilities they need to manage their condition.
  • Communicate sensitive condition-related information to children and families in a caring, developmentally appropriate, and jargon-free manner.
  • Ensure that safeguarding children and vulnerable adult principles are always adhered to and contribute to safeguarding processes as required.
  • Develop and maintain good working relationships with staff supporting the needs of children with Sickle Cell Disease, including paediatricians, GPs, school nurses, health visitors, therapists, education, and social care staff.
  • Manage patient and professional queries over the telephone and face-to-face as appropriate.
  • Assist the Clinical Nurse Specialist for Children and Young People with Sickle Cell Disease in providing educational programs for children and families in relation to Sickle Cell Disease.
  • Participate in audit activities to assess and monitor the quality of nursing practice in the specialist area and assist in implementing changes based on findings.
  • Participate in developing protocols and guidance around the management of inpatient care in acute paediatric services and the development of multi-professional standards and evidence-based clinical protocols for this specialist area.
  • Take an active part in professional networks to ensure the exchange of knowledge and ideas, both locally and nationally.
  • Participate in clinical supervision of self and others and utilize reflective practice techniques.
  • Supervise learners undertaking placements within the Children's Specialist Nursing Services.
  • Assess and report any risk, clinical and non-clinical, for the benefit of self, colleagues, and clients in line with the Risk Management Policy.
  • Maintain a high standard of clinical records on SystmOne, ensuring all activity, both direct and indirect patient contact, is recorded accurately.
Person Specification
  • Registered Children's Nurse
  • First Degree in a relevant subject
  • Community Qualification (Specialist Practitioner)
  • Experience of caring for children with Sickle Cell Disease in a community or acute setting and knowledge of how chronic illness affects children and their families
  • Experience of teaching and facilitation skills
  • Proficient computer skills, including the use of MS Word, Outlook, Excel, and PowerPoint
  • Ability to travel and work in a variety of settings across Hertfordshire
  • Excellent verbal and written communication skills
  • Sound knowledge and understanding of Safeguarding processes
  • Experience of joint working together with other professionals


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