Support & Advocacy Officer - Fabry

2 weeks ago

Amersham, United Kingdom The MPS Society Full time

At the MPS Society we aim to transform the lives of people affected by MPS, Fabry and related lysosomal diseases through specialist knowledge, support and advocacy, and research.

**The Role**:
As a Support and Advocacy Officer you will join a skilled team who collectively provide a unique UK-wide support and advocacy service to over 1500 members.

You will primarily provide direct support and practical guidance to our Fabry members. This patient group is largely adult focused but there will be elements of family and child support. You will raise awareness within both the Fabry community and external agencies; and contribute to the development of resources, to promote self-advocacy within the patient group. A key objective of the role will be to build a sense of community and identity for our Fabry membership. You will also have the opportunity to facilitate and contribute to project work within our organisation, including youth engagement, advisory boards, and support groups.

In addition to supporting the Fabry community there will also be a requirement to provide support to those affected by other conditions under our umbrella.

**Experience & Skills**:

- Minimum of two years’ experience of working with individuals with disabilities within health and social care, education, or related field
- Ability to communicate accurately, concisely and with clarity
- Highly organised with the ability to manage multiple tasks
- Strong attention to detail and commitment to upholding best practices
- Excellent IT skills to maintain accurate case recording, produce clear reports, correspondences and presentations
- Collaborative mindset and enthusiasm for working in a small, dedicated team
- Experience of managing projects and service development is advantageous

**Benefits**:

- Competitive salary
- 5 weeks annual leave (increasing after 5 years' service)
- Additional leave between Christmas and New Year
- Pension contributions
- Employee Assistance Programme

This post is primarily based in our Amersham office however UK wide travel is necessary. A flexible approach to working hours to cover travel, our out of hours phone service, and events and conference attendance is required.

Full details of the responsibilities of this role can be found on the MPS Society website.

If you would like an informal chat about the role or the work of the MPS Society, please contact Steve Cotterell.

**Disclosure & Barring Service (DBS)**

The MPS Society is a charity that provides a range of care, support and activities for children and adults at risk throughout the UK. This is provided through our dedicated support and advocacy service, telephone helpline and out of hours’ support, clinical research, online activities and forums, annual events, patient expert meetings, focus groups and conferences. MPS staff, trustees and volunteers may be asked to be involved in the delivery of its regulated services and activities and therefore will require an enhanced DBS check during recruitment and for this to be reviewed on a regular basis.
- **Due to the sensitive nature of the duties of this post it is exempt under the Rehabilitation of Offenders Act 1974. **_

**Eligibility to work in the UK and a current valid UK driving licence with no more than 6 points, access to a car and a willingness to travel UK-wide are essential for this post.**

**Applications**:
This is a full time role (35 hours per week) however part time hours (a minimum of 28 hours per week) may be offered to the right person. Salary will be pro-rata for part time hours.

**Job Types**: Full-time, Permanent

Pay: £30,000.00-£32,000.00 per year

**Benefits**:

- Additional leave
- Company pension
- Health & wellbeing programme
- Life insurance
- On-site parking
- Sick pay
- Work from home

Schedule:

- Monday to Friday

Application question(s):

- Do you have eligibility to work in the UK?

**Experience**:

- working with individuals with disabilities: 2 years (required)

Licence/Certification:

- Driving Licence with 6 points or less and access to a car (required)

Work Location: Hybrid remote in Amersham, HP7 9LP

Reference ID: 2024.04/SAOF

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