Research Participation and Involvement Manager

4 weeks ago

London, Greater London, United Kingdom Genomics England Full time
Job Title: Research Participation and Involvement Manager

Genomics England is seeking a highly motivated and experienced Research Participation and Involvement Manager to join our Diverse Data initiative. This is an exciting opportunity to work with a talented team to reduce health inequalities and improve patient outcomes in genomic medicine.

About the Role

We are looking for a skilled professional with lived experience of sickle cell to bring their unique expertise to our team. As a Research Participation and Involvement Manager, you will work closely with our research partners, NHS Trust recruitment sites, and sickle cell patients and their support networks to develop, promote, and contribute to activities that increase opportunities for participating in research in the Diverse Data Sickle Cell workstream.

Key Responsibilities
  • Develop and implement effective strategies to enhance sickle cell recruitment site activities, working closely with the Diverse Data Mobilisation and Trial Manager, the Ethics Lead, and the delivery team.
  • Monitor feedback from participants and research staff, and ensure actions are taken to improve research participation and involvement efforts.
  • Identify and support the development of new opportunities for collaborative research participation and involvement activities with organisations such as NHS Research & Development (R&D) offices, NHS PPIE managers, community-based organisations, and Haemoglobinopathy Coordinating Centres (HCCs).
  • Work with Genomics England's Sickle Cell Advisory Board and Diverse Data Community Manager to review and shape PPIE plans submitted by recruitment sites.
  • Develop supporting documentation and provide training for staff at recruitment sites to ensure they follow best practices for research participation and involvement for Sickle Cell participants.
  • Help plan events, contribute to reports and articles, and share learnings from research participation and involvement activities at internal and external meetings.
  • Raise awareness of the value and impact of contributing to Genomics England's research and other activities, and promote these opportunities to participants.
Requirements
  • Strong communication skills, effectively engaging with diverse stakeholders such as research staff and participants to ensure clarity of study content.
  • Deep understanding of attitudes towards research in sickle cell communities and best practices to promote research participation and involvement.
  • Skilled in report writing, developing recruitment strategies, and demonstrating improvements in participant engagement.
  • Exceptional collaboration abilities, working across teams to ensure active participation at all sites, enhancing research outcomes and overall study involvement.
What We Offer

As a Research Participation and Involvement Manager at Genomics England, you will have the opportunity to work on a meaningful mission, contributing to the development of genomic medicine and improving patient outcomes. We offer a competitive salary, a generous pension scheme, life assurance, and a range of benefits including 30 days' holiday, individual learning budgets, and wellness benefits.

We are committed to providing an inclusive environment that promotes equity, diversity, and inclusion best practice. We welcome applications from individuals with diverse backgrounds and experiences.

Please note that this is a fixed-term contract until March 2025.

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