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Project Management Coordinator
2 months ago
The Project Management Coordinator will oversee and facilitate a national registry dedicated to individuals affected by Tuberous Sclerosis Complex.
Key ResponsibilitiesThe coordinator will collaborate closely with clinic leaders specializing in TSC, patient advocacy groups, regulatory bodies, and other pertinent stakeholders. This role serves as the primary point of contact for the project.
Key tasks include:
- Organizing and scheduling regular meetings with the Chief Investigator and various committees, including the Project Management Group, Data Monitoring Group, and Steering Committee.
We are looking for individuals who possess:
- Outstanding organizational capabilities.
- Prior experience in the NHS, research, or educational settings.
- Experience collaborating with healthcare professionals, researchers, and regulatory agencies.
- A background in working with charities and patient advocacy organizations.
- A solid understanding of rare diseases, particularly Tuberous Sclerosis Complex.