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Welfare Officer in Mitochondrial Diseases
9 months ago
Applications are invited for a Welfare Officer, with a special interest in mitochondrial diseases, to join the NHS
Highly Specialised Service for Rare Mitochondrial Diseases at the Oxford University Hospitals NHS Foundation
Trust (OUHFT). The vacancy has arisen due to the expanding local clinical service and the need for further
welfare rights support for this national service.
Oxford has a large tertiary neurosciences centre, with a busy Clinical Genetics department, and a Centre for
Enablement, offering a wide range of clinical and academic interests. Oxford is renowned for its expertise in
neuromuscular diseases, and is a member of the European Reference Network and has recently opened the
Muscular Dystrophy UK centre for neuromuscular disorders. We are looking for an enthusiastic person, ideally
with a background in nursing / therapist / social work, to develop the role of welfare officer within the
mitochondrial service, together with a well-established group of colleagues from paediatrics, clinical genetics,
in housing, benefits, education and employment and provide liaison for the nationally commissioned Highly
Specialised Service in Mitochondrial Diseases. There is an expectation to attend a twice monthly mitochondrial clinic and MDT.
Applications are invited for a Welfare Officer, with a special interest in mitochondrial diseases, to join the NHS
Highly Specialised Service for Rare Mitochondrial Diseases at the Oxford University Hospitals NHS Foundation
Trust (OUHFT). The vacancy has arisen due to the expanding local clinical service and the need for further
welfare rights support for this national service.
Oxford has a large tertiary neurosciences centre, with a busy Clinical Genetics department, and a Centre for
Enablement, offering a wide range of clinical and academic interests. Oxford is renowned for its expertise in
neuromuscular diseases, and is a member of the European Reference Network and has recently opened the
Muscular Dystrophy UK centre for neuromuscular disorders. We are looking for an enthusiastic person, ideally
with a background in nursing / therapist / social work, to develop the role of welfare officer within the
mitochondrial service, together with a well-established group of colleagues from paediatrics, clinical genetics,
in housing, benefits, education and employment and provide liaison for the nationally commissioned Highly
Specialised Service in Mitochondrial Diseases. There is an expectation to attend a twice monthly mitochondrial
clinic and MDT.
The Trust comprises four hospitals - the John Radcliffe Hospital, Churchill Hospital and Nuffield Orthopaedic Centre in Headington and the Horton General Hospital in Banbury.
Our values, standards and behaviours define the quality of clinical care we offer and the professional relationships we make with our patients, colleagues and the wider community. We call this Delivering Compassionate Excellence and its focus is on our values of compassion, respect, learning, delivery, improvement and excellence. These values put patients at the heart of what we do and underpin the quality healthcare we would like for ourselves or a member of our family. Watch how we set out to deliver compassionate excellence via the OUH YouTube channel
The post-holder’s duties will be primarily at the Nuffield Orthopaedic Centre but it is a condition of the appointment that the postholder will be willing to work in any of the Trust’s locations and community locations as required. A proportion of this post will be working from home.
Clinical
It is preferable that the post-holder will have expertise in welfare rights including, but not limited to, state welfare benefits, education health care plans and access to work schemes. The post-holder should have previous experience of working within a multidisciplinary team. The post-holder will preferably have knowledge of the management of mitochondrial disorders.
The Welfare Officer will provide holistic support to patients with mitochondrial disease and work within a multi-disciplinary team. The post-holder will be expected to support clinical activities, including, but not limited to, out-patient clinics and patient information events under the supervision of the medical consultants and family care advisors for the team. The Welfare Officer will be expected to assist patients in completing paperwork for state benefits, housing, education health care plans and access to work schemes under the supervision of the Family Care Advisors.
The post-holder will meet with patients at their time of diagnosis, listening to their needs and referring to resources as required. They will be expected to liaise with schools, the workplace and community services to support the needs of the patient as required.
The welfare officer is required to be aware of local and national referral systems for voluntary and statutory services. They should establish links with patient support groups and other lo
