Regional Lynch Syndrome Expert Network Pathway
1 month ago
The appointed Network Pathway Coordinator will liaise between mainstreaming services in cancer MDTs and specialist services to ensure that all mainstreamed LS diagnoses are managed consistently. The co-ordinator will participate in internal audit and research and provide support:
- Local cancer MDTs via Lynch champions within MDTs
- Mainstreaming pathways
- Family history services
- Primary care clinicians
- North Thames cancer alliances
- North Thames GMSA
The role is suitable for an individual with good IT skills who is passionate about improving services for this previously under-identified group. The post holder would provide regional level co-ordination for the network and support the embedding of transformative Lynch testing pathways through the colorectal and endometrial cancer MDTs within the North Thames Genomic Medicine Service Alliance (GMSA) region. Although beneficial, no prior knowledge of genomics is required for this role and all appropriate induction, training and ongoing support will be provided.
- Monitor and support development of nationally agreed expert network key performance indicators, namely;
- Mainstreaming
- Number cancer MDTs in region: X/Y
- Support available for training yes/no
- Multiprofessional participation
- MDTs: Frequency and numbers referred
- Specialist clinics
- Website development
- You will establish the new North Thames Lynch Syndrome regional services register and the associated services that this will allow. You may contribute to changes to the way this strategy is developed related to your experience of setting up the register.
- You will implement changes when appropriate. This will involve planning and organisation of activities and or programmes which might require the formulation and adjustment of plans for the Lynch syndrome register and expert network. This will include reinforcement of links between cancer services and the Genomic laboratory Hub.
To view the main responsibility, please see the attached the Job Description and Person Specification
London North West University Healthcare NHS Trust (LNWH) cares for the people of Brent, Ealing, Harrow and beyond.
Our team of more than 8,200 clinical and support staff serve a diverse population of almost one million people.
**We run major acute services at**:
- Northwick Park Hospital: home to one of the busiest emergency departments (A&E) in the country. The hospital provides a full range of services including the country’s top-rated hyper-acute stroke unit and one of only three hyper-acute rehabilitation units in the UK
- St Mark’s Hospital: an internationally renowned specialist centre for bowel disease
- Ealing Hospital: a busy district general hospital providing a range of clinical services, as well as 24/7 emergency department and urgent care centre, and specialist care at Meadow House Hospice
- Central Middlesex Hospital: our planned care site, hosting a range of surgical and outpatient services and collocated with an urgent care centre.
We are a university teaching NHS trust, in recognition of the important role we play in training clinicians of the future and bringing the benefits of research to the public.
Working Relationships
- Lynch syndrome transformation project team and its oversight group
- North Thames GMSA Lynch syndrome project Lead and Nursing team
- Lynch syndrome clinic, St Mark’s Hospital, Harrow
- North Thames GMSA
- Clinical Genetic Services
- North Thames Genomic Laboratory Hub (GLH)
- Cancer Alliances in the North Thames Region
- Regional Lynch syndrome networks co-ordinators in other GMSA regions
- NHS England and NHS Improvement (NHSE/I) Cancer Programme
- Colorectal and endometrial multidisciplinary teams
- St Mark’s centre for Familial Intestinal Cancer PPI group & NTGMSA PPI representatives
- Other national Lynch related networks and patient charities, including Lynch syndrome UK, The eve appeal, and MacMillan cancer network
To view the main responsibility, please see the attached the Job Description and Person Specification
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