Nf2 Clinical Fellow

1 week ago


Oxford, United Kingdom Oxford University NHS Foundation Trust Full time

**Aims and responsibilities of post**: Under Consultant supervision to act as the Oxford Clinical Neurofibromatosis Type 2 Fellow to work within the Nationally Commissioned Neurofibromatosis type 2 Team based in Oxford. Clinical: The NF2 clinical service covers multidisciplinary outpatient clinics which are attended by specialists from Neurology, Clinical Genetics, Ophthalmology, Plastic surgery, ENT, Neurosurgery, Paediatric Neurology, Clinical Psychology, and Physiotherapy and supported by a team of 3 advanced nurse practitioners. The service offers high quality care to patients mostly from the Southwest region. It is a joint National service with partner services based in Manchester, Cambridge, and London.

The service aims to improve the quality of life for patients diagnosed with NF2. Patients are seen for an annual review and for visits between as required. NF2 is a variable condition but can be a severe life spoiling and shortening condition requiring multiple neurosurgical procedures. It is a genetic condition which can be inherited.

Affected individuals typically face the threat of hearing loss, occasionally visual loss, and sometimes severely impaired neurological function. By coordinating care within a small number of centers the aim is to improve outcomes for affected individuals in terms of enhancing quality of life, maintaining hearing, and avoiding surgery where feasible. The service has introduced non-surgical treatment options, such as treatment with the anti-VEGF medication bevacizumab with rigorous patient selection and monitoring. There would be an opportunity to attend non NF2 clinics in Clinical Genetics, Neurosciences or ENT, according to the post holders interest and training.

Clinical research is integrated within the NF2 team. The Oxford NF2 Centre has responsibility nationally for collating the data for all patients treated with Avastin. 5. Clinical Governance: The post-holder will participate in clinical governance activities, including clinical audit, clinical effectiveness, risk management, quality improvement activities as required by the Trust, and external accrediting bodies.

**6. Personal and Professional Development**: The post-holder will be required to keep himself/herself fully up-to-date with their relevant area of practice and to be able to demonstrate this to the satisfaction of the Trust. 7. Management: The post-holder will be required to work within the Trust's management policies and procedures, both statutory and internal, accepting that the resources available to the Trust are finite and that all changes in clinical practice or workload, or developments requiring additional resources must have prior agreement with the Trust.

He/she will undertake the administrative duties associated with the care of NF2 patients and the associated service.



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