Nf2 Service Coordinator

2 weeks ago

Oxford, Oxfordshire, United Kingdom Oxford University Hospitals NHS Foundation Trust Full time
The Neurofibromatoses (NF) are a group of genetic conditions which predispose to benign tumours of the nervous system. The birth frequency of neurofibromatosis type 2 is approximately 1 in 33,000 births. Type 2 Neurofibromatosis is a tumour predisposing genetic disorder characterised by bilateral vestibular schwannomas.

The onset of symptoms is most commonly between 18 and 24 years and often presents with symptoms of vestibular schwannoma:
hearing loss, tinnitus and balance dysfunction.

Other than in the mosaic form the gene that causes type 2 Neurofibromatosis has 100% penetrance and almost all affected people develop bilateral vestibular schwannomas by the age of 30 years.

Affected individuals may also develop schwannomas of other cranial, spinal and peripheral nerves, meningiomas and ependymomas. Some patients develop peripheral neuropathy and have visual impairment from childhood due to cataracts or retinal hamartomas.


Successful management of patients with type 2 neurofibromatosis requires a dedicated multi-disciplinary approach that focuses on the need to preserve function.

Many patients develop significant disability in the forms of hearing loss and deafness, balance dysfunction and neuropathies

The multidisciplinary team is made up of professionals in the following specialties:
Adult and paediatric neurology
Neurosurgery
Genetics


To co-ordinate the activity of the Neurofibromatosis Type 2 (NF2) (Highly Specialised Service [HSS]) service ensuring delivery of timely care for patients referred to the services.

The post-holder will play a key role in the development, management and co-ordination of the services ensuring robust lines of communication are in place throughout.

To ensure service databases are up to date and ensure accurate, current data is recorded. To ensure all appropriate monthly data is available for commissioning teams and annual reports.


To ensure patient and clinical data is appropriately collected, analysed and reported to the relevant internal and external groups and make informed decisions regarding the working practices of the services.


To co-ordinate and submit the commissioning requirements (manual data) of the services, liaising with the lead clinician and clinical services manager, in accordance with OUH Trust policy and regulations.

To manage administrative staff, monitor (any said) budgets, liaise with OUH commissioning team.


To liaise with the national NF2 services and (any said) external bodies (such as South West NF2 Satellite Centres) in all aspects of the services.


The Trust comprises four hospitals - the John Radcliffe Hospital, Churchill Hospital and Nuffield Orthopaedic Centre in Headington and the Horton General Hospital in Banbury.


Our values, standards and behaviours define the quality of clinical care we offer and the professional relationships we make with our patients, colleagues and the wider community.

We call this Delivering Compassionate Excellence and its focus is on our values of compassion, respect, learning, delivery, improvement and excellence.

These values put patients at the heart of what we do and underpin the quality healthcare we would like for ourselves or a member of our family.

Watch how we set out to deliver compassionate excellence via the OUH YouTube channel.


Responsible for the day-to-day management of the clinic databases, the organisation of effective clinical management systems, patient and family centred practices, health and safety procedures and administrative processes.

Responsible as Service Co-ordinator for management of systems to ensure that activity data is collected and recorded in a timely manner and reported to Lead Clinician/Clinical Services manager on a regular basis.


  • Monitor wait times and report any potential failure to meet a waiting time target directly to the Clinical Services Manager/Lead Clinician.
  • Regularly review all clinical case-loads to ensure the service is delivering appropriate, safe and effective treatment. Monitor clinical activity data and provide regular reports to the Clinical Lead and Clinical Services Manager.
  • Day to day supervision and work allocation of a Band 4 Secretary/MDT coordinator who will provide administrative support to the Oxford NF2 team
  • Development of working relationships with other agencies and referrers to improve the accessibility of the service to patients and families, ensuring that flexibility with appointment schedules and venue is promoted to meet the needs of the service users.
  • Supporting the administrative team. Ensuring work distribution is equal. Dealing with any escalated queries that the teams pass on. Keeping an overall view on the work the teams are completing and at times partaking in any administrative tasks that may be required.
  • In the absence of the clinical services manager oversee arrangements for cover in liaison with the operational services manager.
  • Provide personnel functions such as recruitment, appraisals, career development,

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