Trustee

4 weeks ago


Remote, United Kingdom Action Duchenne Full time

Job Advert

**Join Us in Making a Difference**

Are you ready to be a catalyst for change and make a difference to those affected by Duchenne muscular dystrophy?

Action Duchenne is on the lookout for Trustees to join our dedicated team.

As a Trustee of Action Duchenne, you will play a pivotal role in upholding the highest standards of governance, working hand-in-hand with the CEO and Senior Leadership Team to bring our charity's vision to life.

This is not a paid position as being a trustee. However, the charity will be covering any reasonable expenses you incur in fulfilling your trustee role, including travel and childcare.

**About You**:
Action Duchenne strongly believes that everyone has talents to offer and share in many ways through peoples’ personal, volunteering and working lives. We are keen to recruit trustees who have experience in one or more of the following areas:

- Legal and governance;
- HR;
- Fundraising and business development;
- Lived experience of disability (either personal or as a parent/carer).
- Proven Chair or board leadership credentials, with the ability to manage a high calibre Trustee group

**Key Responsibilities**:

- Provide leadership to the charity, acting as the guardian of the organisation’s charitable mission and purpose.
- Ensure that the board operates within its charitable objectives, provides a clear strategic direction for the charity, and fulfils its duties within financial scrutiny and risk assessment.
- Maintain a constructive and positive relationship of support and challenge between the CEO and the wider organisation.
- Establish an open and collaborative relationship with the CEO and the Senior Leadership Team, ensuring they are held to account for achieving the strategic objectives whilst respecting the boundaries between the two roles.
- Support the CEO to represent the interests of Action Duchenne externally where appropriate.

**Why Choose Action Duchenne?**

Our work to date has seen over £13 million in ground-breaking research, educational programmes and campaigns, collaborating with more than 15 organisations globally to fund projects across four continents.

If you are inspired by, and committed to, the work of Action Duchenne, and have the ability to act as a critical friend and guide to the board and the CEO, and as a sounding board on strategic opportunities and challenges, then we would love to hear from you.

**Closing Date: 09 April 2024**

**Location: UK (remote)**

**Salary**: Volunteer Role, Reasonable Expenses covered.



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