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Research Data Officer

4 months ago

Stratford, United Kingdom Cancer Research UK Full time

**RESEARCH DATA OFFICER**

**Salary**:From £33,500 per annum

**Reports to**:Senior Cancer Intelligence Manager (Data and Informatics)

**Department**:Policy, Information and Communications

**Contract**:Permanent

**Hours**:35 hours per week

**Closing date**:Tuesday 23 April 2024, 23:55 ***At Cancer Research UK, we exist to beat cancer.
We are professionals with purpose, beating cancer every day. But we need to go much further and much faster. That’s why we’re looking for someone talented, someone who shares our vision, someone like you.

A major new initiative, The CRUK Cancer Data Trusted Research Programme (TRP), is an advisory service that offers a secure environment which supports researchers who are working with sensitive cancer-related data. It will also enable the further use of CRUK-funded research data.

We have an exciting opportunity for you to join us as a Research Data Officer. In this role, you’ll play a key role in the running of the TR Programme and work with external researchers to help the format and wrangle their data to conduct their research. Further to this, you’ll work with CRUK’s internal teams and the wider research community to catalogue the data holdings held by CRUK and support the interoperability of data holdings within CRUK and with other health data repositories across the UK and internationally.

**What will I be doing?**
- Catalogue and publish comprehensive data dictionaries of CRUK data holdings (including on the HDR UK Gateway)
- Working with CRUK’s TRP and Data Liaison Teams to onboard data sets and users into our data architecture
- Working closely with the wider Data and Informatics Team and external infrastructure providers to onboard research projects and ensure technical setup is in line with researcher requirements, including validating testing of the environment before it goes live with external researchers
- Working closely with the onboarded researchers to ensure their data management plans, configuration, formatting and processing of the data can be achieved
- Developing and establishing linkage and interoperability with datasets and repositories external to CRUK
- Transferring data from completed projects to centralised repositories of data in line with appropriate permissions and approvals
- Developing and delivering training materials to external researchers about the environment and ensure confidence in ability before go-live
- Working closely with relevant teams across CRUK to develop the TRP
- Developing and maintaining relationships with relevant external organisations
- Being responsible for defined KPIs and reporting on these regularly.

**What skills are you looking for?**
- Strong understanding of health data management principles, practices and standards, particularly related to cancer and its management
- Knowledge and understanding of wider health, care and social data related to cancer and the experience of patients
- Knowledge of data dictionary publication methods, meta-data management and data cataloguing techniques, methods, and coding schemes such as SNOMED-CT, ICD-9, and READ codes
- Knowledge of data linkage techniques and data analytics system architectures
- Familiarity with key interoperability standards and technologies (such as HL7 FIHR, openEHR, EN/ISO 13606) and the role of OMOP in operationalising data model consistency, in line with data governance frameworks, data protection regulations and ethical considerations in research data management
- Proven ability in managing data sets and liaising with researchers and/or institutions on their data management requirements and handling
- Good relationship management skills, with the ability to establish and develop new relationships with researchers
- Good communication skills, with the ability to explain complex or technical information to a variety of audiences.
- Proven ability to manage multiple priorities and contribute to concurrent projects.

**What will I gain?**

Each and every one of our employees contributes to our progress and is supporting our work to beat cancer. We think that’s impressive.

In return, we make sure you are supported by a generous benefits package, a wide range of career and personal development opportunities and high-quality tools, policies and processes to enable you to do your job well.

Our benefits package includes a substantial retirement plan, a generous and flexible leave allowance, discounts on anything from travel to technology, gym membership, and much more.

We don’t forget people have lives outside of work too and so we actively encourage a flexible working culture.

Our work - from funding cutting-edge research to developing public policy - will change the world. It’s exciting to be part of our team.

**How do I apply?**

There’s a place for everyone at Cancer Research UK. Our vision is to create a charity where everyone feels like they belong, benefits from and participates in, the work we do. We're committed to creati