Deputy Cns in Paediatric Cardiology

An exciting opportunity has arisen to join our well-established Paediatric Cardiology Service, as a Deputy Clinical Nurse Specialist. The area of focus is within the Inherited Cardiac Conditions team.
We are looking for a highly-motivated nurse to be part of a multi-disciplinary team who will have the opportunity to enhance their skills and knowledge in this specialty.
We treat children in various clinical settings such as, outpatients and those admitted to our paediatric in-patients wards. We work closely with our colleagues across Paediatric Cardiology and encourage and facilitate exposure and team-working across the specialities.
**Closing Date**: 04/07/2024
**Interview Date**: 14/07/2024
They will act as a resource of expert advice for other healthcare professionals and must be competent to deliver health promotion and education to parents, their families and others.
The Paediatric Inherited Cardiac Conditions Nurse role supports children, young people and their families with conditions such as dilated and hypertrophic cardiomyopathy, as well as channelopathies including Long QT, Brugada syndrome and CPVT.
The scope of the role is across our hospital sites of Royal Brompton and Harefield and Evelina London. This role also links closely to our Lifelong cardiac network, with communication to local centres and across the MDT.
Guy’s and St Thomas’ is among the UK’s busiest and most successful NHS foundation trusts. We provide a full range of hospital and community services for people in south London and as well as specialist care for patients from further afield including cancer, renal, orthopaedic, respiratory and cardiovascular services.
Evelina London cares for local children in Lambeth and Southwark and provides specialist services across south east England including cardiac, renal and critical care services. We lead a number of specialist service networks aiming to ensure children are treated locally where possible, but have access to specialist expertise when they need it. Our community services include health visiting, school nursing and support for families of children with long-term conditions.
In February 2021 the Royal Brompton and Harefield joined Guy’s and St Thomas’ NHS Foundation Trust, bringing together world-leading expertise in the care and research of heart and lung disease. Our merger provides a once in a generation opportunity to build a lasting, world-renowned heart and lung centre, providing the highest quality care for patients and conducting world-leading research.
- as well as the wider Paediatric Cardiology team:
CLINICS
- CNS consultation for new patients (education, genetics, family history taking, receive family history medical info. e.g. post mortems, support for new diagnoses)
- Health transition consultations
- General support (school, finance, housing).
- Pre-clinic CNS consultation to introduce service and gather sensitive family history, support for bereavement
- Screening clinic lists and adding requests for investigations, ensuring relevant investigations have been performed (clinical and family trees).

INPATIENT
- Meeting newly diagnosed patients on PICU/HDU/ward and day case: offer support, education and introduce service
- Discharge planning as per discharge pathway (to include ensuring parents receive BLS training, CCNT referrals, symptom tracker, medication awareness, family screening, arrange follow-up appointment)
- Post discharge CNS consultation to check in and ask about wellbeing, medications etc
- General - liaise with school, arrange family screening, psychology input, support any housing/work/finance

OUTPATIENT
- Ad-hoc CNS consultations
- Triage majority/all referrals across the ICC service (CM/IA), request appropriate appointment and send CNS letter, ensure appropriate investigations are requested and co=ordinate with NIV/Schedulers/echo
- Arranging service-initiated referrals (as per protocol)
- Liaising with genetics teams - supporting genetic counselling, relaying genomic information to patients and explaining results
- School care plans
- School meeting for education or support
- Letters of support/advice/education (housing, travel, school, financial support, insurance, DLA)
- Safeguarding (regularly supervision/meetings, attending SG and social care meetings)
- Delivering parental BLS training
- MDTs - ICC care group (monthly), cardiomyopathy flags (weekly), inherited arrhythmia MDT (monthly), cardiomyopathy/ICD MDT
- Liaising with local health care teams

GENOMICS (INPATIENT AND OUTPATIENT)
- Gathering genomic information to support family screening
- Relaying complex information to patients/families
- Supporting patients with decision making and understanding of processes
- Taking detailed family history information and creating family trees
- Identifying family member who require screening, offering cascade screening letters and facilitating predictive genetic testing for family members where appropriate
- Awareness of ‘at risk’ geneotype and en