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Board Trustee
2 months ago
My Name’5 Doddie Foundation was set up by late rugby legend Doddie Weir, who was diagnosed with Motor Neuron Disease (MND) in 2017. A devastating disease with no effective treatments and no cure, each of us have a lifetime risk of developing MND of 1:300. The condition takes the life of one third within a year of diagnosis and half within two years.
The Foundation has a single, clear vision: a world free of MND. Funding research lies at the heart of everything we do; it’s what allows world-leading experts to investigate potential drugs, expedite new treatments and, fundamentally, work towards finding a cure for this disease. In April 2023, we launched our ambitious new research strategy “Catalysing a Cure”, which outlines our continued commitment to our vision and to all the people affected by MND.
Trustees
We have an exciting voluntary opportunity to bring in new Trustees to join the board and we are keen to hear from candidates who can bring high level experience, skills and expertise to support the delivery of our ambitious plans.
As a Trustee, you will be taking on a highly valued and critical role at the Foundation, which will include setting and monitoring progress against our strategic vision; working with our Executive team; and acting as a high-level ambassador for our work.
What we are looking for
To complement the existing skills and knowledge on our Board, particularly as current members conclude their terms, we are looking for people who share our vision and could bring expertise of one or more of the following areas:
● Fundraising, income generation or philanthropy
● Communications / Media / PR / Social Media
● Research and innovation/drug discovery and development
● Finance
Board meetings are typically held every quarter either in person or online.
Application Process: Please ensure you apply with your most updated CV and a supporting statement on why you believe you would be the most suitable individual to join our Trustees. Applications should be sent to
Closing Date: 10th October
Term: 3 years per term with 2 terms expected – maximum 3 terms
Interviews: Week 21st October
To find out more about the My Name’5 Doddie Foundation please take a look at our website and if interested in joining the Board, please email